PancreOS Project: Gaps and fragmentation of pancreatic cancer patients’ management in Europe

Status

Timing

Wednesday, 27 June 2024, 16:30 to 17:30 PM, Santiago de Compostela, Spain

Resources

The idea

The PancreOS project aims to create a European network of pancreatic cancer registries to enhance the collection of comprehensive, prospective data from pancreatic cancer patients at any disease stage. This initiative seeks to address the current lack of organised data collection in pancreatic cancer, promoting a better understanding of the disease and facilitating the development of more effective diagnostic strategies and personalised treatments.

In Santiago de Compostela, Spain, stakeholders convened for a discussion on the findings of the PancreOS Project. The event, hosted by PCE with support from the European Pancreatic Club, was chaired by Alfredo Carrato, the chairperson of PCE. The primary focus of the meeting was to address the challenges and future perspectives in managing pancreatic cancer patients across Europe.

The programme

The agenda featured a keynote speech by Raquel Benitez, PancreOS Project Officer, highlighting the outcomes of establishing a European network of pancreatic cancer registries to enhance data collection for research and patient care. A panel discussion, moderated by Nuria Malats, board member of PCE, explored various perspectives:

Registries and clinicians’ viewpoints were presented by Rafael Marcos-Gragera from Spain and Giovanni Marchegiani from Italy.
The European context of PancreOS was discussed by Carmen Martos from Valencia, Spain.
Patient organisations’ perspective was articulated by Francisco Lozano from Belgium.
Industry outlook was represented by Natalia Regidor Alvarez from Spain.
Policy makers’ perspective was presented by Tit Albreht from Slovenia.

The session concluded with a Q&A session, engaging participants and clarifying key points. Alfredo Carrato provided closing remarks, emphasising the importance of collaborative efforts in bridging gaps in pancreatic cancer management across Europe.

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